Welcome

This is a documentation of my journey seeking "my best self"
I am a blessed woman, 2 healthy loving sons and an abundance of all that one needs.
This is not a journey to more of the material stuff, but in seeking my passion and living my best life.
Due to illness, parenting, and busy everyday life, life has lived me instead of me living life.
The purpose of this journey is to turn this back one step at a time.
How will I accomplish this? This I will learn gradually, one thing I am sure of each day of my journey will take me closer to myself.

Blessings,

ETA: I am separated and I can assure you it is for the better. The boys and I are doing good, they are sad but at least they have some breathing space now and don't have to march to the beat of their father's drum anymore. I am more relieved than sad and feel freed from his constant state of depression and lathargic way of living.


zondag 30 september 2007

My loc journey has finally begun!

Yesterday I travelled to Rotterdam to have my hair twisted to start my locs. It took about 6 hours but I am very pleased about the results. About 2 inches where cut off caus I did not like the ends.


This is the endresult:


No time to write...

...caus this has been the sickward for the last few days. Boys and I had the flu and dh had to work from home to take care of us. I did not keep track of what I ate but I am sure it was no more than 1300 kcal each day. I will start keeping track of things starting tomorrow. Hope everyone is doing well!

Blessings,
Chayil

woensdag 26 september 2007

To OP or not to OP

That is the question.

Yesterday I started oil pulling with castoroil mostly for my aching teeth/gums, after 10 minutes of OP I spat out the oil and I repeated this in the afternoon again this time for 15 min. This morning when I woke up I was in tremendous pain and my armpits are totally inflamed and I feel like the inside of my body is on fire! I still OP same effect on teeth and no mucus. I read that OP can make conditions worse and that it is a sign of healing, I am so confused now caus if my body would act up this way despite the antibiotics I would go to the emergency ward straight away caus it would be a sign that the antibiotics are not working and that I probably need an operation or an high dose of antibiotic drip. Now I have no idea what to do is it really possible that the Op would have this kind of effect in 24 hours?? (I posted this on the NP-forum as well caus I really need advise)

I will ask dh to get me some unrefined sunfloweroil today for the OP cause I wonder if it is the Castoroil that is giving me these side effects. I know that castoroil can really trigger skin conditions.

Day 9: What I ate today....

Breakfast


Bread roll 1 130 kcal

Cheese 48+ 1/2 slice 38 kcal

coffee with sweetner 1 mug(225 ml) 0 kcal

Milk low-fat 1 mug 110 kcal

Total 278 kcal


Lunch

Whole weat 2 slices 170 kcal

Low fat sandwich meat 10 kcal

Total 180 kcal

Snacks etc

Sultana naturel 1 pack 170 kcal

Total 170 kcal

Dinner

fajita de pollo 100 gr. 158 kcal

Salsa 3 tbspoons 25kcal

Wraps 3 390 kcal

Total 573 kcal

Daytotal 1201 kcal
4

maandag 24 september 2007

Taking better care of me!

I really have to start taking better care of me. Specially the "outside" of me. My eyebrows are in desperate need of plucking and my beautician is dealing with a sudden death of a beloved familymember so she is not up to working. I am going to call around to see if I can make an appointment at another beautician for tomorrow morning when the lil one is at the daycare. I have been rubbing nivea on my body for the last 3 days but I still haven't established a morning routine and tend to walk around in my robe till at least 11 o'clock.

Today I tried oil pulling, my gums and my front teeth are hurting horribly and I will do anything to avoid going to my dentist right now, still trying to get over the shock of my last 400 euro dental bill for reconstructing a molar. I op-ed with castor oil caus that was the only oil in my bedroom ;-) and managed to do it for 10 minutes not bad for a first timer I thought. I did it around 7 and since I spat it out (it was totally milky I know TMI) I have a stuffed sinus. I have been blowing my nose and running to the toilet every 5 minutes! Wasn't expecting that but I guess it's a sign that it's working (right??!!) I am going to try and find unrefined sunflower or sesameoil today caus castoroil is not sold in the netherlands so my parents send it from Surinam for me to use in my hair. Don't want to "waste" it on oilpulling. I also need to find a toothpaste for sensitive teeth my teeth are really the illtreated stepchildren of my body they suffer from all the antibiotics I have to take and from all the vomiting when I am sick. Poor babies I will nurse them back to health. They are good to me other than the hurting right now I have only one filling/reconstruction on the molar the rest of my teeth and molars are all in good health.

While OP I used a Cuticle & Nailremedy caus my hands and nails really needs some attention. I always had my nails done with acrylic by a nailstylist. It was the easiest way to have beautiful hands and nails without having to fuss with it myself. But a few months ago I had a horrible experience I had to have an operation and the surgeon told me that he rather have me take the nails off for the operation. That was pure hell! My nails had to be soaked in some kind of chemical bath a few minutes every day and i was left with damaged extremely thin nails. It took about 4 months to completely heal! Needless to say I refuse to go through that again so I have been keeping my nails short ever since. I don't like the look of short nails it looks uncared for and neglected so I want to start growing them out again. I just have a problem with growing nails once they all get to a good length one always has to break or tear!!! I am going to do the Cuticle & Nailremedy along with using a nailhardner for a week or 2 and when my nails grow out I will go to a nailstylist to file my nails and give me a manicure (yes you guessed right, clumsy me can't file or polish nails).

Well that is it for now it's almost 10 and I have a list of errands that I need to run today.

Day 8 What I ate today..

I am sooooooo moody! My teeth/gums hurt tremendously and I can't drink anything without a straw and even with a straw it hurts! I asked the dental ass. what I can do about it and they recomended some products for sensitive teeth and gums. If they don't work within a week I have to go to the dentist to get some kind of medication with probiotics and antibiotics wich I will have to take along with my regular antibiotics. I want to cry I thought I finally found an antibiotic that did not make me too tired and that did not have horrible side effects and than this happens.

Breakfast

Bread roll 1 130 kcal

Cheese 48+ 1/2 slice 38 kcal

coffee with sweetner 1 mug(225 ml) 0 kcal

Milk low-fat 1 mug 110 kcal

Total 278 kcal

Lunch

currant bun 1 130 kcal

Total 130 kcal

Snacks etc

Dried prunes 3 30 kcal

Grapes 100 gr. 64 kcal

Total 94 kcal

Dinner
Dh asked (demanded ? LOL) this morning to eat fries, so the meal today is not healthy and I am stuffed! I hate this feeling I never get this feeling from eating regular food but I was so moody/tired today that I had no energy nor will to cook something separate for me. I also missed veggies but neither of the males in this house wanted veggies with their food they claimed that it would spoil the meal!! I hope that this full feeling disappears so I can fix myself a green or fruitsalad.

Schnitzel 80 gram 134 kcal

Chilisaus 1 tbspoon 15 kcal

Tomatenketchup 1 tbspoon 15 kcal

Fries (frideale fries with less fat) 150 gr. 300 kcal

Total 464 kcal

Daytotal 966 kcal


4

YES It's been a week! What I ate today day 7...

Brunch (woke up way to late for sewingclass so I had to run out of the house without breakfast)

currant bun 2 260 kcal
coffee with sweetner 1 mug(225 ml) 0 kcal
Milk low-fat 1 mug 110 kcal

Total 370 kcal

Snacks etc

Banana 1 90 kcal
Dried prunes 3 30 kcal

Total 120 kcal



My son has a day off from school and wanted to bake brownies. My oven broke a few months ago and now I have to bake everything in the combi-microwave so I am a bit nervous about the end result! Keep your fingers crossed ;-) I can't wait to taste them.... 50 minutes to go LOL Update brownies are delicious we just tried a lil piece to "check" hmmmmm I ate way to much dinner so I am too full to have my brownie as dessert but I will have some in an hour or 2 with a large mug of tea YUMMIE

Dinner

Spaghetti Bolognese 300 gram 360 kcal
garlicbread 120 kcal

total 480 kcal

Daytotal 970 Brownie 30 gr. 141 kcal Daytotal 1111 kcal


6

zondag 23 september 2007

Good intentions


I have decided to make a few "fall-resolutions" to help me with my fall challenge.
Intention #1: Walk more! I just tried out the google-pedometer and I walk about 0.8 miles a day to the store and back now that is pathetic! So I will at least walk 2 miles a day. I know that's not much but I have to start somewhere right?!

Intention #2: Eat more snacks like nuts and (dried) fruits even if it's just a handful spread trough the day, it would help to achieve a healthy diet

Intention #3: Weigh every 2 weeks I was going to weigh tomorrow but for some reason I am a bit apprehensive about it. Worried that I might have lost to little or too much so I am giving myself a week more to calm down and I will weigh on the 1st of octobre.


I'm off to hang on the couch with my couchpatato dh ;-) Wish everyone a good night sleep and a fresh dose of perseverence to achieve goals set in the coming week!


Blessings,

Chayil

Day 6 what I ate today...

Breakfast

Cane sugar with cinnamon 1/2 tbspoon 25 kcal

Pancake 1 120 kcal
coffee with sweetner 1 mug(225 ml) 0 kcal
Milk low-fat 1 mug 110 kcal

Total 255 kcal

Lunch

Banana 1/2 90 kcal

Grapes 100 gr. 64 kcal

Yoghurt 1 bowl 50 kcal

Total 204 kcal

Snack etc

Dinner

Rice 100 gr. 147 kcal

Cabbage 250 gr. 80 kcal

Meatballs 80 gr. 182 kcal

Total 409 kcal


Daytotal 868 kcal ice cream 150 kcal Daytotal 1018 kcal


9

zaterdag 22 september 2007

Day 5: What I ate today...

My gurl had her 3rd child friday a beautiful little babygirl named Viandra! She is the most adorable little cuddly baby in the world, I wanted to sneak her out of the babyhotel and take her home but her daddy was watching me like a hawk LOL

Breakfast (late 10:00)

kids white bread 2 slices 170 kcal
Milk low-fat 1 mug 110 kcal
Sandwich meat 1 slice 35 kcal
Diet margarine 30 kcal
coffee with sweetner 1 mug(225 ml) 0 kcal
Total 345 kcal

Lunch


Subway grilled chicken salad with sweet onion dressing 200 kcal

Total 200 kcal

Snacks etc


Subway oatmeal cookie 55 kcal

Beschuit met muisjes (traditional dutch treat when visiting new born baby) 100 kcal

Total 155 kcal



Dinner

whole weat 2 slices 170 kcal

Scrambled egg 110 kcal

Total 280 kcal


Daytotal 980 kcal My boo did not have dinner yet we just made some pancakes with syrop for the kids followed by some yoghurt. We came home @ 19:30 and the kids where way to tired to eat a real dinner. They had a big and late lunch so I guess it won't hurt them. When I fix dh something to eat I will make sure to have some too, to get some more nutrion and kcal in me.

OOOOOH that man of mine! He decided that he wanted pizza from NYP :-( I was hungry so I still had some but that wasn't the meal I was hoping for! I wanted somthing nutricious and yummie and I got greasy and icky! 438 kcal extra in just one and a half slice of cheese pizza Daytotal 1418 kcal

6 I know that is pathetic but we are going to watch a movie so I will make sure that I get at least 4 more glasses in.

vrijdag 21 september 2007

Day 4: What I ate today...

I want to drink at least 10 glasses of water today in addition to my teas and coffees!

Breakfast


Wholeweat bread 2 slices 170 kcal
Milk low-fat 1 mug 110 kcal
Sandwich meat 2 slices 70 kcal
Diet margarine 30 kcal
coffee with sweetner 1 mug(225 ml) 0 kcal


Total 380 kcal


Lunch
Wholeweat bread 2 slices 170 kcal
Tomato 1 10 kcal
onion 1 15 kcal
Olive oil 1/2 tbspoon 45 kcal
garlic 1 clove 5 kcal
Hot sauce 1 teaspoon (3 gram) 2 kcal **

Total 247 kcal

Snacks etc



Dinner
Steamed pangasiusfilet with ginger and soysaus 50 gr. 110 kcal
white rice 1 servingspoon 75 kcal
Leeks 20 gr. 4 kcal
carrots boiled 50 gr. 9 kcal

Total 198 kcal
I WANT SWEEEETS LOL JUST CAN'T TAKE IT NO MORE! Just send my boo and sons to get me a sundae I am craving icecream and chocolate so desperately so I figured what better than a combo of the 2 :-D My sudea will be 277 kcal.
This will make my daytotal 1102 kcal Watched movie with dh and wanted a lil snack so I had 2 rice cakes 54 kcal daytotal 1156 kcal
12

** okay so this might sound yucky lol but it's great! I can eat this on bread or on warm rice hmmm I just love it! Put 1/2 tbspoon of olive oil in a non-stick frying pan, fry the onions until golden and add the garlic, than add the tomatoes and hotsauce let it simmer for 2 min and eat on fresh baked bread or toasted bread. This is great comfort food for cold days and it's filling too ;-)

donderdag 20 september 2007

Day 3 What I ate today...

Yesterday was a disaster but that is behind me now I am not feeling as queezy today and I hope to eat my 1500 kcal. It is really hard to let go of all the sweets my body was in a sugarrush and coming out of it is draining my energy!

Okay strangest thing ever somehow my painkillers were finished without me noticing. Well maybe not that strange my dh had been taking pakkages out of my "stach" and forgot to mention when he took the last pakkage. My dh picked up new meds after work but that meant that I was in pain for the whole day. Looking on the bright side no nausea meant that I was able to eat a good lunch :-D I really enjoyed it! Just took my painkillers so I am going to lay down on the couch with a mug of chai tea and blanky. Hope this was a good day for everyone! Still did not get enough kcal today but I called my doctor and he said it would be ok he was proud that despite the "anorexie" I was still able to eat something.

Breakfast:

coffee with sweetner 1 mug 0 kcal
Milk low-fat 1 mug 110 kcal
Wholeweat bread 2 slices 170 kcal
Cheese 48+ 1 slice 75 kcal
tomato 1/2 5 kcal
Total: 360kcal

Lunch

wholeweat bread 2 slices 170 kcal
lettuce 5 kcal
Tomato 1/2 5 kcal
dressing 1 tbspoon 5 kcal
crab salad 15 gram 43 kcal
Total 228 kcal

Snack etc

Grapes 100 gr. 64 kcal
Total 64 kcal

Dinner
raw veggies small bowl 10 kcal
dressing 1 tbspoon 5 kcal
quiche 1/2 slice 245 kcal
Pizza tomato and cheese 100 gram 211 kcal
Total 471 kcal

Daytotal 1123 kcal Ok so around 21:00 I really wanted something to eat LOL Pizza tomato and cheese 100 gram 211 kcal, and cookie with chocolate 50.4 kcal Daytotal 1384.4 kcal

7

dinsdag 18 september 2007

Day 2: What I ate today..

It's almost 9 and I just had a mug of coffee and a glass of water. I feel a bit queezy so I will eat in half an hour. Yesterday I was so encredibly full because I mostly have some breakfast and dinner and in between only lil snacks like: sweets and chips, my meds give me a horrible sweet craving and have a side effect called anorexie wich means less appetite. So I would have about 2800 kcal a day and about 800 would be from a healthy breakfast and dinner and the rest would be every kind of sweet imaginable. Yesterday I found that coffee and herbtea with sweetner and pieces of apple as "sweets" help to beat the craving. So I will definately do that again today.

Breakfast

Apple 1/2 30 kcal

Banana 1/2 45 kcal

Yoghurt skim bowl 50 kcal

Cane sugar 1/2 tbspoon 25 kcal

Total 150kcal

Lunch (too late 13:00)

whole weat bread 2 slices 170 kcal

Cheese 48+ 1 slice 75 kcal

Total: 245 kcal

Snacks etc

Milk low-fat 1 mug 110 kcal

coffee with sweetner 2 mugs 0 kcal

Total: 110 kcal

Dinner
raw veggies 300 gr. 42 kcal (cherry tomatoes, corn, cucumber, lettuce, apple & onion)
grilled chicken breast 250 gr. 435 kcal (1 tbsp of e.v. olive oil, clove of garlic, fresh ground pepper and salt)
Salad dressing 3 tbspoons 60 kcal
Total: 537 kcal

Day total a disappointing 1042 kcal. I had a mug of white tea with cane sugar (25 kcal) and 2 lil chocolate cookies ( 69 kcal) so my day total 1136 kcal

8 x 250 ml= 2000 ml = 67.6 fl oz.

* Today is turning into a eating nightmare! I am just not hungry, queezy, and extremely tired! I just went to the store to get everything for a filling salad I hope I can get it down (and keep it down) My body is missing all the sugar and eventhough I added some canesugar to my yoghurt it wasn't enough. I think I will make myself a big mug of chai-tea with canesugar and some milk.

What I ate today 9/18/07

Breakfast

Wholeweat bread 2 slices 170 kcal

Milk low-fat 1 mug 110 kcal

Sandwich meat 1 slice 35 kcal

Diet margarine 30 kcal

coffee with sweetner 1 mug(225 ml) 0 kcal

Fresh juice grapefruit and orange 1 large glass (225 ml) 90 kcal

Total 445 kcal

Lunch

Banana 1 90 kcal

Tangerine 1 25 kcal

Total 115 kcal

Snacks etc

apple 1/2 30 kcal

Peanutbutter 75 kcal

Wholeweat bread 1 slice 85 kcal

Total 190 kcal

Dinner


Plantain 1 200 kcal (boiled)

tomatoes 2 20 kcal (lil bit of black peper)

Grilled Salmon 1 400 kcal (1 tbsp of e.v. olive oil, 1 clove garlic, fresh ground black peper and salt)

Total 620 kcal

Day total: 1370 kcal I have 130 kcal left for a snack between 18:30 and 20:00 I think that is going to be a big mug of chai tea with a lil bit of sweetner and low-fat milk and 2 lil squares of extra dark chocolate HMMMMM ;-) Instead of dark chocolate, I had a chocolate chip cookie and a glass of chai tea with a dash of milk and sweetner total 60 kcal. That makes a day total of 1430 kcal.

9 x 250 ml = 2250 ml = 76 fl oz.

Was/am/will be .....

zaterdag 15 september 2007

Help, can't find the right cloth!

Okay for some reason it is impossible to find the right cloth for my vest! I am getting a lil annoyed I called just about every clothstore in the vicinity and YES, they do have the cloth but NO not in that width ;'-( I think the project is going to have to wait another week so I can go to Amsterdam or Utrecht to find the cloth. Next sewinglesson I will bring all my pants and jackets that need to be shortened will save me a lot of money and it will give me something to do since the vest is on hold.

This is the vest:


donderdag 13 september 2007

The Spoon Theory

People often ask me what it is like living with a chronic disease. I've always struggled to explain to others what a typical (sick) day feels like. Not being able to comb your hair, hug your kids, make-love to dh, take shower without assistance, make sandwich, clean your own home and the list goes on and on and on. Sure people hear you when you explain but obviously they don't live it, therefor they cannot comprehend it. The next time someone askes me this I will be well prepared what to answer, no better yet how to make them experience it (minus the pain ofcourse!!) all thanks to Christine Miserandino's Spoon theory!

Always wanted to know how living with chronic disease feels? Quick get some spoons and read the following article!


The Spoon Theory
by Christine Miserandino www.butyoudontlooksick.com

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.

As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know?

I started to ramble on about pills, and aches and pains, but she kept pursuing, and didn't seem satisfied with my answers. I was a little surprised as being my roommate in college and friend for years; I thought she already knew the medical definition of Lupus. Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no one healthy can truly understand. She asked what it felt like, not physically, but what it felt like to be me, to be sick.

As I tried to gain my composure, I glanced around the table for help or guidance, or at least stall for time to think. I was trying to find the right words. How do I answer a question I never was able to answer for myself? How do I explain every detail of every day being effected, and give the emotions a sick person goes through with clarity. I could have given up, cracked a joke like I usually do, and changed the subject, but I remember thinking if I don’t try to explain this, how could I ever expect her to understand. If I can’t explain this to my best friend, how could I explain my world to anyone else? I had to at least try.

At that moment, the spoon theory was born. I quickly grabbed every spoon on the table; hell I grabbed spoons off of the other tables. I looked at her in the eyes and said "Here you go, you have Lupus". She looked at me slightly confused, as anyone would when they are being handed a bouquet of spoons. The cold metal spoons clanked in my hands, as I grouped them together and shoved them into her hands.

I explained that the difference in being sick and being healthy is having to make choices or to consciously think about things when the rest of the world doesn’t have to. The healthy have the luxury of a life without choices, a gift most people take for granted.

Most people start the day with unlimited amount of possibilities, and energy to do whatever they desire, especially young people. For the most part, they do not need to worry about the effects of their actions. So for my explanation, I used spoons to convey this point. I wanted something for her to actually hold, for me to then take away, since most people who get sick feel a "loss" of a life they once knew. If I was in control of taking away the spoons, then she would know what it feels like to have someone or something else, in this case Lupus, being in control.
She grabbed the spoons with excitement. She didn’t understand what I was doing, but she is always up for a good time, so I guess she thought I was cracking a joke of some kind like I usually do when talking about touchy topics. Little did she know how serious I would become?
I asked her to count her spoons. She asked why, and I explained that when you are healthy you expect to have a never-ending supply of "spoons". But when you have to now plan your day, you need to know exactly how many "spoons" you are starting with. It doesn’t guarantee that you might not lose some along the way, but at least it helps to know where you are starting. She counted out 12 spoons. She laughed and said she wanted more. I said no, and I knew right away that this little game would work, when she looked disappointed, and we hadn't even started yet. I’ve wanted more "spoons" for years and haven’t found a way yet to get more, why should she? I also told her to always be conscious of how many she had, and not to drop them because she can never forget she has Lupus.

I asked her to list off the tasks of her day, including the most simple. As, she rattled off daily chores, or just fun things to do; I explained how each one would cost her a spoon. When she jumped right into getting ready for work as her first task of the morning, I cut her off and took away a spoon. I practically jumped down her throat. I said " No! You don’t just get up. You have to crack open your eyes, and then realize you are late. You didn’t sleep well the night before. You have to crawl out of bed, and then you have to make your self something to eat before you can do anything else, because if you don’t, you can't take your medicine, and if you don’t take your medicine you might as well give up all your spoons for today and tomorrow too." I quickly took away a spoon and she realized she hasn’t even gotten dressed yet. Showering cost her spoon, just for washing her hair and shaving her legs. Reaching high and low that early in the morning could actually cost more than one spoon, but I figured I would give her a break; I didn’t want to scare her right away. Getting dressed was worth another spoon. I stopped her and broke down every task to show her how every little detail needs to be thought about. You cannot simply just throw clothes on when you are sick. I explained that I have to see what clothes I can physically put on, if my hands hurt that day buttons are out of the question. If I have bruises that day, I need to wear long sleeves, and if I have a fever I need a sweater to stay warm and so on. If my hair is falling out I need to spend more time to look presentable, and then you need to factor in another 5 minutes for feeling badly that it took you 2 hours to do all this.
I think she was starting to understand when she theoretically didn’t even get to work, and she was left with 6 spoons. I then explained to her that she needed to choose the rest of her day wisely, since when your "spoons" are gone, they are gone. Sometimes you can borrow against tomorrow’s "spoons", but just think how hard tomorrow will be with less "spoons". I also needed to explain that a person who is sick always lives with the looming thought that tomorrow may be the day that a cold comes, or an infection, or any number of things that could be very dangerous. So you do not want to run low on "spoons", because you never know when you truly will need them. I didn’t want to depress her, but I needed to be realistic, and unfortunately being prepared for the worst is part of a real day for me.

We went through the rest of the day, and she slowly learned that skipping lunch would cost her a spoon, as well as standing on a train, or even typing at her computer too long. She was forced to make choices and think about things differently. Hypothetically, she had to choose not to run errands, so that she could eat dinner that night.

When we got to the end of her pretend day, she said she was hungry. I summarized that she had to eat dinner but she only had one spoon left. If she cooked, she wouldn’t have enough energy to clean the pots. If she went out for dinner, she might be too tired to drive home safely. Then I also explained, that I didn’t even bother to add into this game, that she was so nauseous, that cooking was probably out of the question anyway. So she decided to make soup, it was easy. I then said it is only 7pm, you have the rest of the night but maybe end up with one spoon, so you can do something fun, or clean your apartment, or do chores, but you can’t do it all.
I rarely see her emotional, so when I saw her upset I knew maybe I was getting through to her. I didn’t want my friend to be upset, but at the same time I was happy to think finally maybe someone understood me a little bit. She had tears in her eyes and asked quietly "Christine, How do you do it? Do you really do this everyday?" I explained that some days were worse then others; some days I have more spoons then most. But I can never make it go away and I can’t forget about it, I always have to think about it. I handed her a spoon I had been holding in reserve. I said simply, "I have learned to live life with an extra spoon in my pocket, in reserve. You need to always be prepared"

Its hard, the hardest thing I ever had to learn is to slow down, and not do everything. I fight this to this day. I hate feeling left out, having to choose to stay home, or to not get things done that I want to. I wanted her to feel that frustration. I wanted her to understand, that everything everyone else does comes so easy, but for me it is one hundred little jobs in one. I need to think about the weather, my temperature that day, and the whole day's plans before I can attack any one given thing. When other people can simply do things, I have to attack it and make a plan like I am strategizing a war. It is in that lifestyle, the difference between being sick and healthy. It is the beautiful ability to not think and just do. I miss that freedom. I miss never having to count "spoons".

After we were emotional and talked about this for a little while longer, I sensed she was sad. Maybe she finally understood. Maybe she realized that she never could truly and honestly say she understands. But at least now she might not complain so much when I can't go out for dinner some nights, or when I never seem to make it to her house and she always has to drive to mine. I gave her a hug when we walked out of the diner. I had the one spoon in my hand and I said "Don’t worry. I see this as a blessing. I have been forced to think about everything I do. Do you know how many spoons people waste everyday? I don’t have room for wasted time, or wasted "spoons" and I chose to spend this time with you."

Ever since this night, I have used the spoon theory to explain my life to many people. In fact, my family and friends refer to spoons all the time. It has been a code word for what I can and cannot do. Once people understand the spoon theory they seem to understand me better, but I also think they live their life a little differently too. I think it isn’t just good for understanding Lupus, but anyone dealing with any disability or illness. Hopefully, they don’t take so much for granted or their life in general. I give a piece of myself, in every sense of the word when I do anything. It has become an inside joke. I have become famous for saying to people jokingly that they should feel special when I spend time with them, because they have one of my "spoons".

© 2003 by Christine Miserandino Butyoudontlooksick.com
Please note that this story is copyrighted and should not be reprinted in any form without permission from the author. Feel free link to "The Spoon Theory" at www.butyoudontlooksick.com/the_spoon_theory - Thank you!

Mad!


Sometimes knowing that there is someone out there with the same despair, anguish and anger can be all the consolation a person needs. This poem by a lady named Michelle describes my feelings, pain, sadness and anger. Understanding her provides me consolation and consolation brings me hope. I may not know her but I do pray for her and all the other mothers that are in despair, scared for the future and hurting in the present.




Mad
I am mad, so mad, that this disease is taking my life away from me and my kids!


I am mad that I can't work a job that I love,


I am mad that I can't play sports with my kids anymore,


I am mad that it hurts to stand and cook (one of my joys in life),


I am mad that I have to cancel so many plans we make because I am sick again,


I am mad that I don't look the same as I did a year ago,


I am mad that people I run into don't even recognize me after knowing them for years,


I am mad that I have to have help with my house and my yard,


I am mad that I can't run the simplest errands,


I am mad that I have to have these darn blood tests all the time,


I am mad that the meds are not working,


I am mad that I am in worse shape now with meds than I was when we started,


I am mad that I have to take pain meds to just make it through the day,


I am mad that I have to put my family in danger when I drive on the meds,


I am mad that I am dealing with this alone (no spouse),


I am mad that I can't bowl anymore,


I am mad that I can't paint my kitchen that needs it so badly,


I am mad that I can't get my oven clean enough because I can't bend over or be on my knees that long,


I am mad that I can not wrestle with my little God child who doesn't understand why Auntie Shell is sick and he can't always come over,


I am just plain mad,


mad at myself,


mad at my emotional state,


mad at my physical state,


just plain mad!!!




Michelle, written during a time of despair. The words might have been a little different, but the feelings expressed have been felt by us all at one time or another.copyright (c) March 1999

woensdag 12 september 2007

So proud of me...

Today I finally did what I promised myself weeks ago! I got up and headed straight for the bathroom! Took a shower, brushed my teeth and fixed my hair. I feel so energized! Wich was really necessary being in pain and having my bouncy pre-schooler at home! Right now I am going to fix myself a orange and grapefruit juice and a slice of toasted wholewheat and cheese. I hope I can keep this new found energy and perhaps even go for a walk with the lil one.

Well that's it really just wanted to share my lil moment of victory ;-)

First sewinglesson...


YEAH my sewinglesson was a great success! I was somewhat nervous stepping into a strangers house and having to stay there for 2 hours LOL I like to meet people and observe them from a distance not that outgoing I guess. Once I know someone it gets better but I am not the kind to open up to strangers. The lady was really nice and young (I know age should not matter but I live in a small white dutch village and well the elderly are not to eager on meeting foreigners or "allochtonen" as they refer to us here) and she lived in Amsterdam for several years wich made her more worldly (read used to black folks lol) than most.


At first I was a bit apprehensive about choosing a project so she encouraged me to flip through some sewingmagazines to get ideas. My eyes were caught by a beautiful white wrap vest/jacket it was beautiful and elegant and simple in it's design. I wasn't to sure if it was do-able for me as a first project but she seemed confident enough for both of us. I traced the pattern and even though it was quite tricky following the right lines for my size etc within minutes it felt as if I had been doing this for years. The time flew by and I can't wait till monday for my next lesson! This weekend I will be on a mission to find the right cloth for my vest, it's great to feel passionate!


Blessings!


Locs

I have always been facinated by locs and the people that wear them. The thing that facinates me most is the non combing and brushing lifestyle. I know I was born to have locs, I have a great dislike for combs, brushes or any other stylingtool, I hate blow dryers and chemicals and I hate people touching my head LOL I started twisting my head for locs on 2 occasions but both times the perfectionist in me took over and made me loose them out again. I want beautiful cultivated locs that I am able to wear in a bun in twists or cornrows depending on my mood. To achieve that good partings are essential and I am lousy at parting my own hair. My cousin (who just started her locs herself) found a friend of hers willing to help me start my locs! I am so exited but scared at the same time. But I know I am ready for locs, in my dreams I always have locs and when I wear twists I am most happy (till it's time to loose them again that is) so I am as ready as I will ever be to start with my journey!

29th of september will be D-day! I have done so much research in the last week that I am starting to feel like a loc-expert, now let's pray that once I have my locs I can apply all my new found knowledge!

This is my natural hair (dripping) wet no products (don't mind my panties :-o ):

These are some ladies with locs that I admire:




Blessings!






My virtual model


This is my goal!

This is reality for now ;-)

To reach this goal I will have to drop around 22 pounds!
Loosing 15 in the fallchallenge will be more than sufficient though! I am not planning to starve myself and knowing that I won't be able to go to the gym or move a lot for that matter I will have to achieve this by sensible eating only!

This affirmation has helped me in the passed to loose 20 pounds, and I am starting to say this to myself multiple times a day again! I know I will achieve my goals!

I am Chayil, my body is my temple I only bring healthy and fresh offers to my bodytemple!

Blessings!

zondag 9 september 2007

Passion

As a young girl and teen I was very passionate about several things: my favorites where definately sewing and dancing. Due to all lifes challenges I lost my passion for these things and decided that it is about time that I demanded my passions back! This year I took Salsa lessons with my dh, it was great fun and it was a great way of getting closer to each other. Since dh does not have a lot of time on his hands for salsa due to personal goals of his own (wich I fully support him in!) we have put salsalessons on hold.
I did decide to take sewinglessons again to find that passion again. I haven't touched a sewingmachine for over 15 yrs except for the time I hemmed my curtains ;-) so lessons are definately a MUST!
This monday will be my first lesson and I am so exited! I feel like a lil kid waiting for the first day of school! I have so much ideas going around in my head of things I want to make I should make a list to see wich ones will be less challenging and therefor best to start with.

That's it for now!

Blessings!

Breathing excersises: getting ready for my fall challenge!

1 Do three sents of ten "Baywatch Bikini Breaths" That's thirthy total energy cocktails. Every day. It shouldn't take more tha five or six minutes eacht time you do a set of ten. it's a good idea to begin your day with a set of ten. That way your metablosm is off to a roaring start. You'll feel som much better and have so much more energy that you won't mind getting up a few minutes earlier. But if you should forget, don't beat yourself up. Just make sure you get them in before you go to bed. Remember, this plan is about ease, convenience, lowering strss. After meals is also a good time to whip out a set of ten. If at all possible, stand up when you do them. If you can't (remember the point is to DO them), fit them in while sitting in your office, driving the kids to soccer, or drying the dishers. Whatever you do, do thirty every day.

1) Stand up and say, " I am the greatest" - not only out load, but in your posture. Remember your body speaks volumes.
2) Take a long slow belly breath, inhaling through your nose.
3) Lock the breath inside your body and hold it for four times as long as you inhaled. For example, if you inhaled to the count of four, hold it to the count of sixteen.
4) Now, exhale through your mouth twice as long as you inhaled. Again, using the four example, exhale to the count of eight.


2 Take ten quick "KUNG FU BREATHS" before each meal. The key to health and a thin body is properly functioning digestive system. This simple breath only takes a few seconds, but it will stoke your digestive fires. Try to get in ten before every meal. If not ten do five.

1)Stand up. Remember these exercises can always be modified to suit your needs. Byt whenever you can, stand up and act as if you mean it.
2) As you inhale deeply through your nose, tilt your head back as if you are looking to see if there's dust in the chandeliers.
3) Pause for just a millisecond before ...
4) Exhaling forcefully through your mouth. Make a loud, definate "HA" sound as you bring your head back to its normal position.


3 Walk around the block (or for a minimum of five minutes) once a day with your mouth full of water.

I got these exercises from http://members.fotki.com/AnaisKarim/about she has amazing weightloss results so I am going to give these a try!